20.02.2014 AJP Make the papers!
Seneory room gets a page in the Bristol Post!
WHEN you open the doors of an inconspicuous-looking shed at the bottom of a Bedminster garden you won't find tools and the lawnmower.
Instead, cascading fibre optics light up the room and a glittering disco ball throws different colours all over the walls.
The sensory room is the work of Rebecca and Gavin Fry, who managed to raise £5,000 to get it built.
It is used by their two-year-old daughter Aimee, who is severely disabled after being deprived of oxygen at birth and now the room is finally built the couple are throwing open its doors to other disabled youngsters in the area.
Mrs Fry, 26, told the Bristol Post: "We first took Aimee to a sensory room when she was about eight months old.
"We'd never heard of it before but it was amazing watching her – she came alive.
"She was reaching out and trying to touch everything and was extremely calm. She seemed like a different baby altogether."
Aimee suffers with severe brain damage, cerebral palsy, visual impairment and uncontrolled epilepsy. When she was born, she was not expected to live more than a few hours, but she continued to fight and showed no signs of deteriorating. After her parents took her home at 12 days old, the youngster became stronger and stronger.
She was able to eat mashed foods, was drinking well, and was moving her limbs more. but from eight months old, Aimee started to suffer with seizures, which she still has up to eight times a day.
She has been hospitalised with the seizures five times, with the last two proving difficult to stop.
The couple have been told that Aimee is unlikely to reach her 19th birthday, and that she will be lucky to reach the age of ten.
Desperate to find something to help, they searched for hours online and came across stem cell therapy, which is available in America and can reduce the frequency of seizures or eradicate them altogether.
After speaking to doctors, the couple have decided that this could transform Aimee's life and their next battle is to raise another £15,000 so that they can take her to Panama City to get treatment.
Mrs Fry said: "Aimee has so much more life to give and as her parents we want her around for as long as possible.
"The magic cure is just within reach, we just need a helping hand to get there."
Instead, cascading fibre optics light up the room and a glittering disco ball throws different colours all over the walls.
The sensory room is the work of Rebecca and Gavin Fry, who managed to raise £5,000 to get it built.
It is used by their two-year-old daughter Aimee, who is severely disabled after being deprived of oxygen at birth and now the room is finally built the couple are throwing open its doors to other disabled youngsters in the area.
Mrs Fry, 26, told the Bristol Post: "We first took Aimee to a sensory room when she was about eight months old.
"We'd never heard of it before but it was amazing watching her – she came alive.
"She was reaching out and trying to touch everything and was extremely calm. She seemed like a different baby altogether."
Aimee suffers with severe brain damage, cerebral palsy, visual impairment and uncontrolled epilepsy. When she was born, she was not expected to live more than a few hours, but she continued to fight and showed no signs of deteriorating. After her parents took her home at 12 days old, the youngster became stronger and stronger.
She was able to eat mashed foods, was drinking well, and was moving her limbs more. but from eight months old, Aimee started to suffer with seizures, which she still has up to eight times a day.
She has been hospitalised with the seizures five times, with the last two proving difficult to stop.
The couple have been told that Aimee is unlikely to reach her 19th birthday, and that she will be lucky to reach the age of ten.
Desperate to find something to help, they searched for hours online and came across stem cell therapy, which is available in America and can reduce the frequency of seizures or eradicate them altogether.
After speaking to doctors, the couple have decided that this could transform Aimee's life and their next battle is to raise another £15,000 so that they can take her to Panama City to get treatment.
Mrs Fry said: "Aimee has so much more life to give and as her parents we want her around for as long as possible.
"The magic cure is just within reach, we just need a helping hand to get there."
17.02.2014 GREAT NEWS!
The Aimee jade project sensory room update!
The Aimée Jade Project was set up in January 2012 and just over 2 years later, we are excited to announce that we have arrived at our first milestone thanks to all the of support from our friends, family and the generous support of our community!
The sensory room is complete! Click here to have a look at our gallery along with a small construction picture diary! Thanks once again to everybody who helped us get this far through making donations, spreading the word through social media, atteneding our fund rasing events and doing whatever you could to help raise the money to make this happen! |